I'm putting Salt Lake City on the map! Just got back from Huntsman Cancer Hospital in SLC. Trying to connect with my neurosergeon here in Provo to discuss another surgery followed by chemo (probably BCCU). Feeling okay, a little tired, lightheaded, cloudy, and vertigo/dizzyness stuff. I can feel the tumor swelling, but it's not causing any headahes this time so that's really good. Just not sure if surgery is worth it again or if different chemo will help much. Onc at Huntsman has little hope beyond 6-9 months for surgery and chemo (more like 6 months for just surgery and 3 months for just chemo) no prognosis or much discussion on no treatment. Yeah he wasn't very positive compared to my onc in Provo. So I'm trying to get in ASAP to see neurosurgeon and talk about effectiveness of surgery-tumor has shifted a liitle so it may be a little tricky and/or less effective than last time, but we'll see. I need to wait 2-4 weeks anyway to get all the Avastin out of my body so it doesn't interfer.
So phsyically and mentally I'm slowing down a little and working through what I should do. Professionally/scholarly I'm wondering of I can do this internship now or if I should try and put it off for 3 months. I may have to move back in with my parents if I have another surgery, lose my driver's licience, and need rehab etc. Chemo may affect me a lot too-no way of knowing yet. Iguess I'll just have to figure it out. Any opinions, suggestions, thoughts, or examples from similar real life experiences?
Monday, February 28, 2011
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3 comments:
I wish I had some wise counsel to give to you. I can't imagine how hard those choices must be to make. We'll keep praying for you and your doctors to know what to do.
Thanks for letting us know how you are doing. We continue to keep you in our nightly prayers. Please let us know if you need anything. We love you and we wished we lived closer to help. If you are up to it in sept. we loved to see you for the BYU game.
Glad to hear there are not headaches this time around. If you need me to harass anyone to get stuff done, call me. I like harassing doctors, and after spending time with inmates lately, I don't frighten easily.
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